Magic Johnson remains a living symbol of hope

November 8, 2011 7:46 AM

Magic Johnson still beating HIV 20 years later 2 decades after being diagnosed with HIV - the virus that causes AIDS, Magic Johnson is still going strong. His foundation is helping others, giving them hope while educating people about the disease.
posted by 2manyusernames (37 comments total)

For people with unlimited money and access to healthcare, HIV has become a chronic manageable disease. For everyone else, not so much.
posted by killdevil at 7:56 AM on November 8, 2011 [27 favorites]

There was a recent interesting 538 post on how Johnson's announcement of his HIV positive status changed public opinion about AIDS.
posted by zamboni at 7:57 AM on November 8, 2011 [2 favorites]

You know who else has been beating HIV for over twenty years? Jim J. Bullock. WHERE IS HIS FPP, EH?
posted by mightygodking at 8:07 AM on November 8, 2011 [1 favorite]

It absolutely changed the entire character of the dialog. I remember watching the broadcast of his announcement. You could almost hear the cognitive dissonance clanging around the world..."BUT BUT BUT...HE'S NOT GAY!!!"
posted by spicynuts at 8:08 AM on November 8, 2011 [11 favorites]

It was our Kennedy assassination moment, our Challenger space shuttle moment, a moment when the Southland lost its sports innocence.

I remember him giving his speech about how he "attained" HIV and yeah, it was a surprise. There had been plenty of high profile victims, but this guy wasn't Rock Hudson, this was Magic Johnson, this was the guy Michael Jordan wanted to be like.

I am happy for Ervin Johnson. I wish him the best.

But the fact that "Kennedy" didn't die, I think, has lessened people's fear of the disease. I have been surprised by the number of people who remark to me that Johnson "got cured" of HIV, which is in part true because he's lived a relatively healthy 20 years with the disease. Good for him I wish him 20 years more and then another 20 years. But he's not cured. And AIDS is still a problem.

The high profile success of this one man makes is seem as if the AIDS boogey man isn't as frightening and scary as it was made out to be and for most people without the resources of Magic Johnson that is probably less than a good thing.

Which is a terrible thing to say because I wish no ill will towards Magic and I'm glad after so many others got beaten by the disease Johnson showed it didn't have to be a death sentence.
posted by three blind mice at 8:08 AM on November 8, 2011 [4 favorites]

Managed to live without the deletrious effects of HIV, you say? Talk about a Magic Johnson!





I am so, so sorry.
posted by grubi at 8:11 AM on November 8, 2011 [11 favorites]

I found out about Magic Johnson having HIV while I was at a Soundgarden show. Chris Cornell dedicated Big Dumb Sex to him and broke the news.
posted by Sailormom at 8:12 AM on November 8, 2011

I have an in-law who learned of his positive HIV status just after drugs became available to manage it. He has a very good job; the most important part of that job is his health benefits, which, bluntly put, keep him alive. He enjoys traveling and a very active life, but if he were to lose his job... talk about scary.

Now that we've got folks turned around on what it means to have HIV, let's see if we can get 'em to see the value of affordable health care for all. I'm not holding my breath.
posted by kinnakeet at 8:16 AM on November 8, 2011 [4 favorites]

I remember watching the broadcast of his announcement. You could almost hear the cognitive dissonance clanging around the world..."BUT BUT BUT...HE'S NOT GAY!!!"

I remember Martina Navratilova observing that if it had been a female athlete who contracted HIV while serially fucking around on her spouse, she would have been crucified by the media as a slut who got what she deserved.
posted by Trurl at 8:17 AM on November 8, 2011 [23 favorites]

HIV is a life sentence, not a death sentence (unless you are in the 3rd World)
posted by Renoroc at 8:18 AM on November 8, 2011 [2 favorites]

killdevil: "For people with unlimited money and access to healthcare, HIV has become a chronic manageable disease. For everyone else, not so much."

I have friends who are HIV+ and make about $50,000 a year. They receive all the treatment that they need, and will never progress to AIDS, or die of HIV-related causes if they keep the treatment up.

Granted, they're fucked if they ever lose insurance coverage, but HIV treatment is by no means reserved for the fantastically wealthy. Without insurance, I believe the treatment costs run about $1500-$3000 a month. Hardly affordable to the average Joe, but still a far cry from what Magic Johnson had to spend to stay alive. There are also numerous government and charitable programs that can help to close the gap.

Being poor and HIV+ is not a death sentence, and it's dangerous to spread that myth, lest it causes somebody to not seek out treatment.

That's not to say that HIV is a cakewalk. I still wouldn't wish it on my worst enemy. However, we need the dialogue to progress and acknowledge that HIV treatment is available, and cheaper than many other treatable chronic health conditions. If anything, we should be pushing for widespread availability of free public treatment, given that studies are beginning to reveal that ARV therapy drastically reduces transmission rates, and can also prevent HIV infection for those who have been unintentionally exposed, if administered shortly after exposure.

We may not be currently equipped to cure HIV, but we do have plenty of weapons in our arsenal to drastically reduce the number of new cases, and treat current patients. These people are hardly on life support as some above have alluded, any more than a diabetic who takes insulin is "being kept alive" by that treatment.
posted by schmod at 8:21 AM on November 8, 2011 [10 favorites]

For people with unlimited money and access to healthcare, HIV has become a chronic manageable disease. For everyone else, not so much.

This includes most people in the US. The public health infrastructure for HIV in this country, while not perfect, is very good. The government pays for all the relevant medications. There are places where there are waitlists for treatment (mostly in the South), but there are only about 9000 people on those waitlists, which is pretty good when you consider that there are ~700k folks diagnosed with the disease in the US.
posted by OmieWise at 8:22 AM on November 8, 2011 [4 favorites]

Great, he's beating HIV. Now if he's just stop helping to rip off poor people.
posted by jessssse at 8:23 AM on November 8, 2011 [1 favorite]

It absolutely changed the entire character of the dialog. I remember watching the broadcast of his announcement. You could almost hear the cognitive dissonance clanging around the world..."BUT BUT BUT...HE'S NOT GAY!!!"

I was twelve when the announcement was made. I heard about it on the schoolyard, and I didn't believe it. To be fair to my twelve-year-old self, I had previously fallen for the rumors of Scott Baio dying and Donny Walberg needing to get his stomach pumped after sucking off an entire soccer team, so I was determined not to be the victim of this sort of rumor/prank again.

My best friend told me that Magic Johnson had AIDS, and I laughed in his face, because, come on, Magic Johnson is married.
posted by Parasite Unseen at 8:23 AM on November 8, 2011 [2 favorites]

Trurl: "I remember Martina Navratilova observing that if it had been a female athlete who contracted HIV while serially fucking around on her spouse, she would have been crucified by the media as a slut who got what she deserved."

interesting theory. My gut feeling reply is the fact that a very very large percentage of male athletes are "serially fucking around" whereas much fewer female athletes are doing the same. When so many are doing something the impact of one person doing it is far less.
posted by 2manyusernames at 8:27 AM on November 8, 2011

interesting theory. My gut feeling reply is the fact that a very very large percentage of male athletes are "serially fucking around" whereas much fewer female athletes are doing the same. When so many are doing something the impact of one person doing it is far less.

Yeah, no, it's the sexism.
posted by OmieWise at 8:33 AM on November 8, 2011 [26 favorites]

Donny Walberg needing to get his stomach pumped after sucking off an entire soccer team

In my generation, that was Rod Stewart and it was his backing band.

Funny how attitudes have changed so much over time. I remember when it came out that Magic Johnson had HIV. So many people I worked with, including myself at the time, commented on how he was probably a "fag" and now he had AIDS and was going to die. Quite a lot of people felt he deserved it because if he wasn't gay he wouldn't have it.

It makes me cringe to think of the jokes we made and how I was brought up (not so much by my parents, who mostly pretended such things didn't exist, or were only reserved for "sick" people, but by my friends, teachers, priests, and peers) to think that gay people were some class of evil, sick person who has chosen this lifestyle. But hey, at least this new AIDS thing will wipe them all out! Go back and watch some old Eddie Murphy or Sam Kinnison routines to see what the general attitude was.

Guh. I want to go back to the teenage and 20-something me and punch me in the face.

Back on topic, I have a friend who came out as HIV+ back in the late 90s. Even then, I assumed he wouldn't be around much longer. He's still alive and well, thankfully.
posted by bondcliff at 8:33 AM on November 8, 2011 [5 favorites]

Great, he's beating HIV. Now if he's just stop helping to rip off poor people.

He was a paid spokeman for a company and the lawsuit is from two years ago. Don't make it sound like he's Bernie Fucking Madoff.
posted by grubi at 8:38 AM on November 8, 2011 [3 favorites]

Yeah, the MJF (Magic Johnson Foundation) does really good work, especially for urban youth, all across the country. People with axes to grind should probably take it elsewhere.
posted by joe lisboa at 8:41 AM on November 8, 2011 [1 favorite]

Several months ago when it was 110 degrees for way too long ehre in Texas, there was a scraggly cat that hadn't moved from under a tree in my yard for three days when I scooped him up and took him to the vet. I got him fixed, but he also has FIV, so I named him Magic Johnson. He's doing fine so far, so it must've worked.
posted by cmoj at 8:46 AM on November 8, 2011 [2 favorites]

You know who else has been beating HIV for over twenty years? Jim J. Bullock. WHERE IS HIS FPP, EH?

#1

#2
posted by mrgrimm at 8:57 AM on November 8, 2011 [1 favorite]

The government pays for all the relevant medications. There are places where there are waitlists for treatment (mostly in the South), but there are only about 9000 people on those waitlists, which is pretty good when you consider that there are ~700k folks diagnosed with the disease in the US.

It's not pretty good if you're on the waiting list and you have to wait in line for years to get a medication that you need to be taking daily to live. And "the government " (what government?) does NOT pay for "all the relevant medications." Even if it does, how long is that going to last in our almighty new age of austerity?
posted by blucevalo at 9:03 AM on November 8, 2011

It's not pretty good if you're on the waiting list and you have to wait in line for years to get a medication that you need to be taking daily to live.

Well, no, that's how statistics work. But anytime anything isn't 100%, it really sucks to be the person in the other x%. (In this case ~98.7% of people are covered.)

And "the government " (what government?) does NOT pay for "all the relevant medications."

What do you mean? I'm honestly not sure. The government is the US government through funds attached to what is popularly called the Ryan White Care Act Part B, disbursed through the AIDS Drug Assistance Program (ADAP). What drugs do you think are relevant but not covered by ADAP*? Your comment reads a little like you're angry about something but don't really know the details, but if I'm missing something please let me know. I don't know exactly how ADAP works in every state, but I have a pretty good general working knowledge of the program, and I know the specifics in the two states in which I've worked in HIV public health.

*Yes, the ADAP formulary varies from state to state, but does cover anti-retrovirals across the country.
posted by OmieWise at 9:24 AM on November 8, 2011 [3 favorites]

Canadians with HIV don't have to be rich to receive care, and they're all insured, by definition. Nobody in Canada has to worry about "losing" their health insurance.
posted by ethnomethodologist at 9:41 AM on November 8, 2011 [3 favorites]

Canadians with HIV don't have to be rich to receive care, and they're all insured, by definition. Nobody in Canada has to worry about "losing" their health insurance.

Yeah, I think I heard about that somewhere. Where did I hear about this Canadian health insurance thing? Hm.
posted by padraigin at 9:48 AM on November 8, 2011

That's almost exactly what I was going to write!

ethnomethodologist, what's the point of your comment?
posted by OmieWise at 9:50 AM on November 8, 2011

The cure for AIDS is money. Didn't anyone see the South Park episode? You need to inject large amounts of concentrated cash.
posted by Leisure_Muffin at 9:51 AM on November 8, 2011

The high profile success of this one man makes is seem as if the AIDS boogey man isn't as frightening and scary as it was made out to be and for most people without the resources of Magic Johnson that is probably less than a good thing.

To his credit, Johnson is well aware of this phenomenon:


"I guess I was the blessing," Magic said, "and then I was the curse."
We were sitting in the lobby of a hotel during the 2011 NBA Finals, which Magic was working as analyst for ABC. The subject was HIV.
"The blessing was that I came out and announced and everybody started talking about AIDS openly, maybe for the first time," Magic said. "Then the curse came because kids started saying, 'Oh, I can get it and still be like Magic. He's all over the place. He's doing fine.'"
Magic felt obligated, as he should, to set the medical record straight.
"You can't look at the example of one person and say, 'I'll be like that,'" he said. "The virus acts differently in everybody. Hopefully the meds work and there's early detection. But you can't be sure. Early detection is the key because full-blown AIDS is still a death sentence. It's important that people get checked."

posted by stargell at 10:05 AM on November 8, 2011 [3 favorites]

ADAP formularies (the lists of drugs covered) AND eligibility criteria vary widely from state to state. The waiting lists would be much, much longer if the eligibility criteria used in my state were used across the country. While all of them cover anti-retrovirals, I would be very happy to make the case that drugs for all opportunistic infections, for co-morbid conditions such as hepatitis C, for treating side effects of the meds, and for related issues that when treated can improve quality of life, such as anti-depressants, should be covered. They are in fact covered in states like California or New York.

ADAP is a stop-gap system in the absence of real universal health care. How well it works depends almost entirely on where in the country you live. The same, of course, is true for Medicaid. Ryan White has a lot more gaps to fill in states that have really crappy Medicaid programs (i.e. most of the South) or states that have refused to contribute their own tax dollars to HIV care.
posted by gingerbeer at 10:15 AM on November 8, 2011 [2 favorites]

Slightly more on topic, I heard the news while I was in a taxi in New Orleans on my way to an HIV conference. I remember wondering how this news would change things, if at all. I cynically thought at the time that this was going to turn out to be about him being gay and closeted, in other words just reinforcing the popular narrative.
posted by gingerbeer at 10:19 AM on November 8, 2011

Mod note: Comment removed. Maybe think twice or thrice about how scathingly sarcastic use of slurs will be interpreted by folks who don't know what your intent is.
posted by cortex (staff) at 10:31 AM on November 8, 2011

Fair enough, cortex. So what I was trying to say is that when Magic Johnson was diagnosed in 1991, over 25,000 Americans had already died of AIDS. But because those dead people were mostly viewed as "faggots" in the eyes of ignorant, hateful people, they didn't really count.

It's natural for people to dismiss disease in "the other" as not being relevant to them. It's also immoral. To be fair to Magic Johnson his public persona has been great for AIDS research and support and he's been careful to avoid politicizing language about "innocent victims" and the like. He's done a lot of good. But I'm still intensely bitter about the US response to the AIDS crisis until the early 1990s and it's a bit painful to be reminded that it took a straight guy getting sick before a lot of people gave a damn.
posted by Nelson at 10:37 AM on November 8, 2011 [3 favorites]

(And I misread that chart: 25,000 people died in 1991 alone. I don't have stats on hand but the cumulative death toll in 1991 looks to have been around 100,000.)
posted by Nelson at 10:39 AM on November 8, 2011

FRONTLINE ran some segments of an interview with Magic yesterday. It's good, and even contains parenting advice.
posted by Mayor Curley at 10:41 AM on November 8, 2011

OmieWise: "It's not pretty good if you're on the waiting list and you have to wait in line for years to get a medication that you need to be taking daily to live."

Well, no, that's how statistics work. But anytime anything isn't 100%, it really sucks to be the person in the other x%. (In this case ~98.7% of people are covered.)

One last comment on this -- the fact that only 6,489 people are on wait lists in 12 states (pdf) does NOT in any way imply that all the rest of the people living with HIV in the US are in health care or on meds or in any way covered. An estimated third of all people living with HIV in the US are not in care.
posted by gingerbeer at 10:57 AM on November 8, 2011

An estimated third of all people living with HIV in the US are not in care.

That's true, but a huge number of people who are covered aren't taking their meds, and that's not something to blame on the ADAP program either. My point above was that talking as if treatment is only available for the rich not only misrepresented the truth, it may well discourage those who know they're HIV positive but have no insurance from seeking care. It may be true that were test-and-treat more widely implemented ADAP wait lists would get much longer, but it may not be true. I know in DC we were advertising to increase the ADAP rolls.
posted by OmieWise at 11:03 AM on November 8, 2011 [1 favorite]

Agreed that treatment is indeed available for many of those who aren't rich, but not sure that misrepresenting the truth in the other direction is doing any favors either.

We do have a better safety net for people living with HIV in the US than for most other health conditions, and I am very proud to have worked on Ryan White reauthorization since it was first passed. It's an amazing model of how to try to fill the gaps in our health care system. It does not, however, cover everyone or everything, nor is everyone in the US eligible for what it provides. It's not even a national program per se, but a set of grants to states and cities and organizations across the country, each of which does slightly different things with it.
posted by gingerbeer at 11:17 AM on November 8, 2011